Welcome to Spoony Stories ❤️🥄 Sharing stories is a powerful reminder that we're not alone. Each week, we share stories from our vibrant community to hear all about their experiences being neurodivergent, chronically ill and disabled, and to get to know some of the voices that make our Spoony community so wonderful. This week, we chat with Hannah from the United States!
Welcome to Spoony Stories ❤️🥄 How lucky are we to have the kindest community on Spoony! One of the best parts of the week is getting to know some of the wonderful people on Spoony and learning more about their experiences with neurodivergence, chronic illness and disability.
This week, we've been chatting with Hannah from the United States. She opens up about what it's like to live with pain every day, her experiences with living with invisible disabilities, and so much more! ♥️
Are you neurodivergent, chronically ill, and/or disabled?
Disabled and chronically ill.
What health conditions do you have?
Fibromyalgia, hEDS, POTS, and ME/CFS.
How do you explain your health conditions to other people?
I explain that my health conditions are invisible. It doesn’t matter whether I look amazing, I’m still dealing with symptoms every minute of every day.
What impact do your health conditions have on your daily life?
I live with pain every single day of my life. It impacts my life in every way. I struggle to work, socialise, and look after myself as my average day is dealing with pain that would send anyone else to the ER.
What barriers have you experienced in making friends and connecting with people?
Making friends can be really tough. Some people assume that I’m unreliable or a bad friend because I have to cancel plans often due to flare-ups. No one is as understanding as they could be and it hurts, almost as much as my chronic pain.
What's been your experience on Spoony so far?
I couldn’t believe that there’s a space like Spoony, it’s made a world of difference for me. I’ve been able to find friends who are disabled and chronically ill.
Each week, we share stories from the incredible Spoony community in our newsletter, podcast, and on social media. Share your story with us.